Initiative
Dystonia may not be as rare as many think, but it is definitely a
little known condition. People living with this disorder may not know they
have it, or may understand so little of how it affects their function they
feel no true connection to the name.
It is, therefore, extremely important that those who have a greater
understanding of what Dystonia actually does direct some portion of their
energies into promoting awareness.
Official organizations and committees have a work to do for the affected
community, but there is no limit to the benefits we receive when we are
willing to challenge ourselves, investing in our future. The personal
initiative is the core strength of the awareness effort.
Recently, Grace Correia has put her creativity to use in the design of
Dystonia awareness badges, such as the one to the right. Her effort, I
think, is a prime example of how much good can come of one individual's
desire to make a positive impact on the world and her situation. The graphic
is a teaser to those who have never heard of Dystonia and an empathetic
boost to those who have felt the effects of it.
Grace's graphic sparked a whirlwind of ideas, raised awareness, encouraged
many to do more in their own lives and brought a smile to the face of
everyone who saw it.
Dystonia is not going anywhere soon and neither are we. Living life to the
fullest, staying active, healthy and visible is an important awareness
component. Everyone who sees your movements coupled with a positive
attitude, confidence and/or smile will register a positive memory about
others with similar traits.
Still, there are many who can learn about Dystonia without ever having
first-hand contact.
Do you have an idea you've been harboring which, if pulled into play could
be of some benefit to others living with Dystonia?
Share it. I love it already!
-Rebekah
