Awareness often starts at home. You might be surprised what your loved
ones don't know. Then again, you might not be
too surprised.
Dystonia Living Magazine is soliciting ideas from our readers on how to
share information about living with Dystonia with friends and loved ones!
Share your ideas with the movement disorder community. How did you do it?
Which methods worked and which outright failed? We want to know!
Write Dystonia Living Magazine and
tell us about it.

While we are waiting, here are
a few tips for talking about
Dystonia with children.
1.
Stay calm.
Questions are normal, no matter how
wild they may seem. Children really want to know.
2.
Be honest about how you feel.
Children understand a lot
without speaking. So, don't waste your time telling stories. Be
frank. Be honest. But, be positive --hopeful about outcomes,
even when things look bleak.
3.
Prepare.
Children lose interest quickly after
they figure the message. Know what you want to say and how you can say
it most concisely. Stay on point and try not to ramble. Ramblers
are often mistaken for the 'Whine/Complain' set. You don't want to join
that crowd.
4.
Be brief.
Droning on and on will just give
Dystonia another bad name and really... the D can't afford it.