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Links of Interest
(All the links on this page will take you away from DLM.) Add a website or tell us about updates!
Empowerment Tools
A very comprehensive source for assistive technology items, plans and information!
The most amazing traveling exposition of services, adaptive equipment, organizations, presentations & events!
Movement Disorder Virtual University
Sponsored by the excellent educational organization WeMove, this site is well worth the visit.
Community Portals (Bulletin Boards, Chat)
Groupe de Support Web et clavardage en francais!
The BB associated with this site, focusing on those issues relevant to youth, families-- all those affected by generalized and/or early-onset Dystonia.
Beery Bulletin Board for Parents
The board appears to be active. Retta Beery responds with information and encouragement.
24h chatroom.
This web site includes four separate moderated bulletin boards discussing various forms of Dystonia.
Dystonia Neuro Movement Disorder
Associated with Care4Dystonia.
Chatroom for movement disorders
Bulletin Board for Dopa-Responsive Dystonia
Blogs (Journaling on Dystonia and/or disability issues)
Neuromuscular Atrophy
Quest of a Dystonic Buddhist Neuroscientist
Wife, mother, grad student (Tardive Gen.D & Gastroparesis)
Spazmic Confessions: to help let go of Dystonia
Young and active model (hemidystonia)
A Life Adapted - Learning to Live with Multi-Focal Dystonia
Young. Newly diagnosed. Candid.
An interesting, substantial history of the genesis of CD
The author's journey seeking confirmation of Paroxysmal Dikenesias
I'm a 26 year-old disability rights and long-term care reform
advocate, writer, seeker, helpmate, and just a guy now trying to explore
life and love in the Big City.
Websites & Organizations
New Zealand Dystonia Patient Network
Amadys France
Dystonia Australia
PO Box 570
WESTMEAD, NSW 2145
Ph: 02 9845 9146
Fax: 02 9845 5934
Email: info@dystoniaaustralia.org.au
Dystonia Association of Kentucky
Österreichische Dystonie Gesellschaft
Dystonia Association South Africa
Dedicated to the supply of information and support for people with Dystonia and other movement disorders in South Africa
A newly formed group, whose goal is to reduce/eliminate overhead, channeling more funds directly to research.
Dystonia Medical Research Foundation
Founded in 1976, the Dystonia Medical Research Foundation (DMRF) is a 501(c)3 organization dedicated to serving all people with dystonia and their families. Since its inception, the DMRF has grown from a small family-based foundation into a dynamic membership-driven organization led by a Board of Directors and network of volunteers with personal connections to dystonia
The WE MOVE™ Web Site, the Internet's most comprehensive resource for movement disorder information and the hub of movement disorder activities on the web.
Care4Dystonia is a nationwide community-based health organization dedicated to Setting the PACE: Patient Care, Awareness, Collaboration and Education for the dystonia community and the general public.
Bachmann-Strauss Dystonia & PD Foundation, Inc.
The Bachmann-Strauss Dystonia & Parkinson Foundation was established in 1995 to find better treatments and cures for the movement disorders dystonia and Parkinson's disease and to provide medical and patient information.
Really, the only specific presence for Dopa-Responsive Dystonia
National Institute of Neuro Disorders and Stroke
Dystonia Information
Beery Family Dystonia Information
Older site, DRD affected family
National Spasmodic Torticollis Association
The mission of the National Spasmodic Torticollis Association is to support the needs and well being of affected individuals and families...
Spasmodic Torticollis Dystonia
Providing hope for your future (site includes forums)
Connecting the disability community to information & opportunities
We are an international professional society invested in the research and care of patients with Movement Disorders
